参加脑瘫女性定期筛查计划的障碍和推动因素：定性生命历程研究

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Abstract

Aims

To determine the barriers and enablers to regular, women-oriented screening programmes for women with cerebral palsy (CP); and to discuss the participants’ suggestions for change.

Design

Qualitative life course approach.

Methods

Twenty-five life course interviews were conducted with women in 2020 who identified as having a diagnosis of CP. Interviews were conducted in person or using electronic platforms. Framework analysis was used to interpret the data.

Findings

Access and utilization of regular screening programmes for women with CP across the life course are determined by multiple socioecological factors. Three themes are discussed focusing particularly on cervical and breast screening: 1. barriers, 2. enablers and 3. women's suggestions for change. Some women chose to opt out of sexual health checks for fear they would be too uncomfortable or the procedure would be too difficult. Practitioner attitudes towards disability in general, as well as the extent to which they understood the effects of CP for women, was highlighted as a barrier. Accessibility and adaptability of the environment also influenced women's uptake of screening.

Conclusion

Women with CP face many challenges to their sexual and reproductive healthcare. These can deter them from participating in regular women-oriented screening programmes, which puts them at higher risk of preventable diseases. Understanding the lifelong effects of CP for women, and the interaction with their reproductive health could help to reduce unmet needs and increase participation in relevant screening across the life course.

Impact

Knowledge of the challenges to regular screening programmes experienced by women with CP across the life course is crucial to provide appropriate preventative healthcare for women with CP across different stages of life. Elements of this knowledge could have benefits for the care of all disabled women.

摘要翻译（仅供参考）

宗旨

确定针对脑瘫 (CP) 女性进行定期、以女性为导向的筛查计划的障碍和促成因素；并讨论参与者的变革建议。

设计

定性的生命历程方法。

方法

2020 年对被确定为 CP 诊断的女性进行了 25 次生命历程访谈。采访是亲自或使用电子平台进行的。使用框架分析来解释数据。

发现

在整个生命过程中，CP 女性定期筛查计划的获取和利用取决于多种社会生态因素。讨论了三个主题，特别关注宫颈和乳房筛查：1. 障碍，2. 促成因素和 3. 女性对改变的建议。一些女性选择退出健康检查，因为担心她们会太不舒服或检查过程太困难。从业者对一般残疾的态度，以及他们对 CP 对女性影响的理解程度，被强调为一个障碍。环境的可及性和适应性也影响了女性接受筛查。

结论

患有 CP 的女性在性保健和生殖保健方面面临许多挑战。这些可能会阻止她们参与定期以女性为导向的筛查项目，这使她们面临更高的可预防疾病风险。了解 CP 对女性的终生影响，以及与她们生殖健康的相互作用，有助于减少未满足的需求，并增加整个生命过程中相关筛查的参与度。

影响

了解 CP 女性在整个生命过程中所经历的常规筛查计划面临的挑战，对于为生命不同阶段的 CP 女性提供适当的预防保健至关重要。这些知识的要素可能有益于所有残疾妇女的护理。

原文链接：

https://doi.org/10.1111/jan.15058

THE

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